I am hoping everyone had a relaxing, enjoyable weekend. I know I did. To complete this column series on alopecia, today’s will offer information on the National Alopecia Areata Foundation.

I am hoping everyone had a relaxing, enjoyable weekend. I know I did. To complete this column series on alopecia, today’s will offer information on the National Alopecia Areata Foundation.

According to the home page of the website, NAAF supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease and educates the public about alopecia areata.

As I navigate around this site, I am pleased to see so many resources. There is a Just diagnosed page that goes over the basic types of alopecia, treatment types, and offers links to specialists, and links to finding others with AA.

The marketplace here offers loads of links to Web sites that sell all sorts of comfortable hats, scarves, wigs, false eyelashes and eyebrows. I even saw one site that specializes in sunscreen! Summer is especially a great time to check this out.

You can continue to delve deeper into AA info on the research page. Check out events and fundraisers, or check out “What’s new” right from the home page. At this time you can be very proactive. Check out the top information on this page:



NHC’s campaign to Put Patients First needs your help

The House and Senate have already begun writing a health care reform bill, and time is quickly running out to get our proposals included. We believe that it will be the collective patient voice that will make the difference in the health care reform debate. The National Health Council (NHC) wants to capture a minimum of 3,000 signatures in three weeks so we can present the Campaign to Put Patients First petition to members of Congress when they return from the April recess.

How can you help?

Sign the petition for change and invite your friends and family members to sign. Utilize your Facebook, Twitter, or other social media outlets to encourage people to learn more about health care issues and the National Health Council’s Five Principles of health care reform. Communicate your suggestions for health care reform with your elected officials and share your personal health stories so elected officials will understand that health care reform must meet the needs of individual patients.


As we all know, the potential for meaningful reform is greater now than ever before and our action is urgently needed. We are very excited about what we can achieve together to ensure health care reform is truly patient focused.



...And that’s just the top article on the page! Finally, I want to introduce a real name and email address to any of you who are interested in a local support group. LeeAndrea Hazelrigg. Her email is: justlahaze@sbcglobal.net. She is a local support group leader associated with NAAF. This group meets 1 to 3 p.m. four times a year with three more meeting left this year.



Here are the dates:

Saturday, July 25, 2009

Saturday, September 26, 2009

Saturday, November 21, 2009

St. Joseph Medical Center 1000 Carondelet Drive Kansas City, Missouri 64114



Please e-mail her if you are interested in going to one of the meetings. I have been invited to speak at one of the meetings, but as of yet, have not been able to set the date.

By all means if you are a person who needs support I hope that some, any or all of the last few weeks have been helpful. If you are someone who lives with an AA afflicted person there is help at these sites for you as well.

If you do not fall in any of the aforementioned categories, please take a moment to check out these sites and perhaps be more aware of what they have are dealing with. Feel free to support any of the groups with a donation or simply with a smile and compliment the next time you see a person with little or no hair.

Have a beautiful day!